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28 March

I got a call today at 3 from The hospital telling me that Mary was going to be discharged to the assisted care facility at 4:30.  Luckily Sandra was off today and got Mary packed up.  When I arrived, there were only a couple of things left to be taken out.

Upon arriving at the assisted care facility, we found that Sandra had moved Mary in and everything was ready for her. Hopefully Mary will be able to work out for longer periods of time and regain much of her strength, coordination and stamina.  Unfortunately today and tomorrow will be spent getting organized and getting Mary's medicines.  I really don't expect the real workouts to begin until Friday and then unfortunately there will be two days  (the weekend) of minimal workout.
 

29 March Mary was moved to a private room today.  In one way she is happy, but on the other hand she is upset because they have a beware of contagion sign on her door. In the hospital, they said it could always be a problem due to the shingles. 

When I did exercises with her, she seemed stronger than yesterday, but she was upset because she did not do as much for the therapist. She can hold herself upright once she is standing, but it is still a chore to life her posterior the first 10".

She is becoming impatient as she is not progressing as fast as she would like. Also frustrating is the air mattress that they have for her.  She sinks into the center and therefore has trouble turning on her side or getting her feet off the bed in preparation for standing.
 

30 March Not too much different today.  Mary appeared to be in a better state of mind, although she still doesn't like the air mattress.  It's too confining.  She went to the therapy room today, but I guess she was not impressed with the session, because she didn't say anything about it.  Tomorrow I get a full day of helping and observing.
 
31 March Today I woke at 7:30 and arrived later than I would have liked.  Mary had eaten her cereal but not her egg (it looked like egg imitating tofu and not even I who will eat most anything was tempted. She drank her juices and I felt under the circumstances that she did well.  We did some exercises and after we finished, the therapist came.  (they only come once on Saturday and don't do much). The therapist got Mary to sit in the wheelchair and had her do exercises (only about 15 minutes) in the chair. After an hour Mary wanted to get back in bed.  She said she did not feel good. 

Lunch came and Mary ate all of her pork loin and half of her potatoes.  She is drinking her water and juices without encouragement.  She then slept for a while and was alert for the rest of the afternoon.  We watched a Cantiflas movie (I fell asleep at the end of the movie) and Mrs. Brown (about queen Victoria's possible affair).  Dinner came and Mary ate her fish sticks and mandarin oranges, but not the "frozen peas and carrots (who can blame her).

It's been two months since Mary's operation and she has come a long way even though she doesn't realize it.  (she thinks she should be doing things that she was doing in December.)  It was just last Friday that she stood for the first time with a fair amount of assistance,  Now it is still a problem lifting off of the air mattress, but getting off the commode or the wheelchair is very easy for her and I don't have to do much work.  Even in the air mattress, she can move herself to a sitting position ready to stand.  She can shuffle her feet enough to move a foot distance to the right.  Moving to the left still causes some problems.  Tomorrow I want to see how long she can stand.  Right now when she feels the bed or wheelchair behind her she allows her knees to buckle and sits down.  I've been trying to make her sit slowly.

It occurred to me yesterday that Maybe Mary's pain could be handled better by an acupuncturist. I need to find the number of Mary's acupuncturist and see if she will make a house call. I talked to Monica about this idea and she said that one of her good friends (living in Florida) said that the problem seemed to be a classic case of the Liver Chi Blockage and one session should clear it up.  I would pay almost anything to solve Mary's pain problem without using the narcotics she is on.
 

1 April This is not an April Fool Joke.  I was very proud of Mary's progress today.  First she ate all of her three meals and second she was able to stay in the wheelchair for over two hours.  The more she is in the wheelchair, the less need there will be to have the air mattress.  Mary still has trouble standing after being seated on the bed.  The other thing she is going to have to work on more which I had forgotten about was her breathing exercises.  Mary's typical lungful of air is about 1/4 of what it should be.  Therefore the doctor has asked that she practice with her inhaler every hour.

Tuesday Mari's older sister and her husband are flying in from Ephrata, Pennsylvania.  They will stay until Saturday.  Sandy will pick them up from the airport and they will have my truck available to drive if the wish to drive. I know that having her older sister there and being able to converse with her will lift Mary's spirits and I hope we see even faster progress.
 

2 April Mary looked very well when I arrived.  She told me that she had stood for five minutes at the parallel bars without holding on.  She felt very good about her workout.  As part of her therapy she did her own shower.  I did not ask if she also did her own shampoo and curlers, but she looked brilliant when I arrived. I think she is progressing very well.  She told me she had been out of bed for five hours and (while back in the bed) wanted to get in the wheelchair again. she spent about three more hours in the wheelchair.

About four, her acupuncturist called and spoke to me and to Mary about coming tomorrow and bringing her needles. I hope all works out well and that acupuncture is the solution to the pain.  If it is , I (and you) should be 100% convinced of its place in medicine.  I already think the oriental medicine has not been given a fair evaluation by the AMA (or the establishment) in this country.  I think western medicine has some of the answers, but not all of them. She will have seen Mary by the time that I arrive, but the true test will come at 5:30 or 6 when Mary gets her most severe pains.  I'll be sure to let you know how it turns out.

Tomorrow Mary's older sister, Martha, will arrive.  I am looking forward to this for raising Mary's spirits. I think they are now fairly high.  This will only help raise them higher.  Mary may get a reprieve from the local cooking while they are here as Robert (Martha's husband) and I will probably go out to buy dinner for the us and we will probably get something for Mary as well.
 

3 April I don't think I can give you you a very detailed description of Mary's day, because we didn't have much time to talk. Before I arrived Sandra had called me and told me that they had found a sub dermal infection in Mary's back  We had noticed a little blood last night on the sheets, but nothing compared to what was found this AM.  They took a culture and were going to send it to the lab.  Sandra also told me that they had found pneumonia in the lower part of one of the lobes of Mary's lungs and were treating both infections with antibiotics. 

When I arrived at three, I asked what was being done and was told that the physician wanted them to send Mary to the surgeons office.  The surgeon's answering ran a pretty good defense and kept us from talking to him. When we finally talked to a nurse, they refused to hear that the infection might be related to the surgery.  Manor Care finally called an ambulance and they came to take Mary to the ER. We quickly stripped Mary's room of everything belonging to her as we didn't know when we would be back.

Once in ER, I went up stairs to find her regular hospital doctor.  At five instead of going home, he came to see Mary.  He determined in consultation with the ER doctor that the infection should be incised and that antibiotics should be administered.  We finally got out of there at 8:30 and got Mary's room put back together and started home at 9:30.  Mary's sister and brother-in-law were a great help in both moves.

I almost forgot to mention that the acupuncturist came and Mary felt that the first session helped, but at 7 she still needed a pain killer.  I guess we'll have to see what the second visit will do.  I don't think I know anything more and as I am beat and it's past 11, I'm going to quit.  I've already written more than I thought I would.
 

4 April Early in the day, I called the oncologist's office and made an appointment for Mary to see him on Monday. When I arrived, Mary was in good spirits and Martha reported that she had eaten all of her lunch and they were happily talking. I went out to sit with Robert and read yesterday's paper while Mary and Martha looked at today's.  When Mary transferred from the bed to the wheelchair (each day it is easier hopefully soon I will just be steadying her) I noted that they had not changed her dressing from what was put on yesterday.  I commented on that to the attending nurse and the dressing was changed.  On moving her back a couple of hours later, I noticed that I had dislodged the dressing and that it was still weeping. The nurse came and squeezed the affected area and applied a new dressing. 

Mary told that her therapy was not as rigorous today as yesterday.  She thought it might be because of the pneumonia.  I will check into that tomorrow.
 

5 April Everything happens when I'm not there.  Mary was very tired when I got there.  She said that they had gotten her up before 7 and forced her to eat her breakfast.  She told them that 8:30 would be a better time and to let her eat her breakfast without an audience.  She then had a shower and shampoo and Sandra helped her with her hair.  She says that they really worked her in physical therapy and that that tired her. 

The doctor from the hospital stopped by on his way home and checked her infection.  It had seemed to have healed over and showed no inflammation.  He said preliminary results of the culture showed nothing and that it could have been incidental accumulation of liquid under the (radiation) wound.  He noticed that Mary was shaking a little bit and suggested that her blood work be checked.  I found that the blood work was over a week old and they have ordered a test for tomorrow.

Mary did not eat her dinner as well as she had eaten her lunch and breakfast.  I wonder if the Colombian empanada and Puerto Rican chicken soup  she had consumed prior to dinner had anything to do with it?
 

6 April Before lunch Mary did her therapy.  She stood in front of the sink, brushed her hair, brushed her teeth and washed her face. She returned to her bed and then Mary walked out of her room with the aid of the walker. A very productive morning. 

During the afternoon, the doctor came and checked her out.  She changed a couple of the Medications, but felt that Mary was doing fine. Tomorrow Mary's sister is leaving.  It has been good therapy for Mary having her here and good therapy seeing how well Mary is doing.

Next week I should get a better idea of how Mary is doing in the morning as I will be there all day (I will be on spring break).
 

7 April

The results of the culture of the material on Mary's back was negative.  That would imply that it was not anything to be concerned about.  Her blood test was also normal with the calcium a little low.  Yesterday Mary had her second acupuncture session and has not asked for a pain killer since.  She has been receiving the regular pain killers, but has not needed the supplemental fast acting pain killer.  She is scheduled for a third session on Monday.

Mary's sister and husband left at 11:30 and all were sad to part, but I think Martha left with a sense of Mary's well being and that Mary is making a very rapid recovery. 

The remainder of the day was fairly uneventful, although as Mary was preparing for bed, she wanted to put her hair up in curlers.  Monica handed her the curlers and she did the job very quickly and efficiently all by herself.
 

8 April

Easter Sunday was spent quietly with little festivities.  Mary did some exercises and then we read the Sunday paper together. We watched some  movies on television and did some more exercises and toured the facility in the wheelchair. Mary is moving quite easily from bed to wheelchair and even walked a few steps to the wheelchair holding only onto my hands.  I am looking forward to seeing all that she can accomplish. I want to make sure she is getting instruction of what she can and cannot do after the type of back surgery she had.
 

9 April Today began with therapy in the room.  When I got there they were supposed to have been taking Mary for her shower, but were running late.  While Mary was in the shower, they came to draw blood, but said they would come back later.  When Mary returned from the shower, Sandra put her hair up in curlers and waited for therapy to take Mary to the gym.  As they didn't show up, she dried Mary's hair.  When she finished, the acupuncturist had arrived for Mary's last session. As I said previously, Friday and Saturday, Mary had not needed any pain killers, but last night she did.  When the session was over, she showed me some pressure points to massage and I worked on them after she left.  Mary did not need any pain killers tonight either.

After lunch we visited the oncologist. He examined Mary and had a blood test done to evaluate the level of the Multiple Myeloma.  He also ordered x rays to rule out further invasion and then detailed the regimen of drugs that she will be taking over the next two months.  I had to sign papers relating to the hazards of Thalidomide and stipulate that Mary would not become pregnant while taking them (this is overkill.)

We returned to Mary's room and did some more exercises, read the newspaper and watched some television.  The only excitement planned for tomorrow is the x-rays.